Information and inspiration for the chronically ill

Interesting insight into one person’s experience with chronic illness/es. There is so much still unknown about auto-immune diseases and the terrible toll they take on the sufferer and their friends and families. It is very difficult being told “but you don’t look sick” when you feel like utter rubbish and have barely been able to get out of bed. Holistic treatments are very much coming to the forefront as conventional medicine fails sufferers of these awful auto-immune diseases. I suffer from Behcet’s Syndrome and also have associated fibromyalgia. I was misdiagnosed for nearly 20 years – often believing I was going crazy as I could not get a diagnosis. I have been on various immune-suppressants which have all been a failure. I am hoping there may be some other alternatives that can lower my inflammatory levels to a normal level and I have started taking ginger and tumeric in a tablet form (Pain Ease). The wonderful Spoon Theory http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ is a great way to try to explain how an illness such as Behcet’s, Rheumatoid Arthritis, Lupus, Fibromyalgia or any other chronic disease that depletes you of energy, controls your activities.

Everything Matters: Beyond Meds

I added another tab for the navigation menu. Thought I’d call attention to it. This one is for folks living with chronic illnesses of all kinds. I was struck physically ill from the brain-injury and systemic insult incurred by long-term  and excessive (prescribed) psychiatric drug use  and the subsequent withdrawal from the drugs (iatrogenesis). Many of my symptoms are like that of all sorts of auto-immune and other long-term chronic illness. (CFS, fibromyalgia, etc) — because in fact the drugs exacerbate or encourage such manifestation.

These are articles about learning to cope with being seriously ill and also learning to heal from such illness.

This is general information and/or personal information that has been helpful to me and may or may not apply at all to any particular given individual with whatever illness you may be coping with.

The tab and the drop down menu will be permanently at the…

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