This is so true! How I wish we could outrun the flares!
I have recently started Lyrica and it has been a miracle drug for me in terms of pain management. I think I am one of the lucky ones as many people have side effects that make the drug intolerable.
Over the last week or so I’ve been really struggling with the brain fog and fatigue. My doctor and I are trialing an increase in my Lyrica doses and so far I’ve seen little to no improvement in the pain levels (the reason for the Lyrica) and a massive increase in the brain fog/fatigue department.
I feel almost like I’ve taken a 6 month leap backwards in my mental capabilities!
It’s really hard to explain what it’s like to be on this sort of drug. My mother-in-law told me about someone in her support group who recently started Lyrica and I really liked her description… you can start off feeling fine, almost good, so you go about your day as normal but at some point you realise that you feel as if you’re high on drugs, you are completely out of it and unable to do anything…
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Interesting insight into one person’s experience with chronic illness/es. There is so much still unknown about auto-immune diseases and the terrible toll they take on the sufferer and their friends and families. It is very difficult being told “but you don’t look sick” when you feel like utter rubbish and have barely been able to get out of bed. Holistic treatments are very much coming to the forefront as conventional medicine fails sufferers of these awful auto-immune diseases. I suffer from Behcet’s Syndrome and also have associated fibromyalgia. I was misdiagnosed for nearly 20 years – often believing I was going crazy as I could not get a diagnosis. I have been on various immune-suppressants which have all been a failure. I am hoping there may be some other alternatives that can lower my inflammatory levels to a normal level and I have started taking ginger and tumeric in a tablet form (Pain Ease). The wonderful Spoon Theory http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ is a great way to try to explain how an illness such as Behcet’s, Rheumatoid Arthritis, Lupus, Fibromyalgia or any other chronic disease that depletes you of energy, controls your activities.
I added another tab for the navigation menu. Thought I’d call attention to it. This one is for folks living with chronic illnesses of all kinds. I was struck physically ill from the brain-injury and systemic insult incurred by long-term and excessive (prescribed) psychiatric drug use and the subsequent withdrawal from the drugs (iatrogenesis). Many of my symptoms are like that of all sorts of auto-immune and other long-term chronic illness. (CFS, fibromyalgia, etc) — because in fact the drugs exacerbate or encourage such manifestation.
These are articles about learning to cope with being seriously ill and also learning to heal from such illness.
This is general information and/or personal information that has been helpful to me and may or may not apply at all to any particular given individual with whatever illness you may be coping with.
The tab and the drop down menu will be permanently at the…
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